Late Presentation of HIV / Infected not yet Diagnosed

1. The European Consensus Definition of Late Presentation of HIV
European late presenter working group: Late presentation of HIV infection: A consensus definition, HIV Medicine 2010, Published Online: 17 Jun 2010

Late Presentation Definition - Background
A common definition of the term "late presenter" is essential if late presentation is to be more effectively dealt with by public health authorities across Europe and elsewhere.

Two initiatives, HIV in Europe and the "Late presentation for HIV treatment on Europe" joined efforts in Spring 2009 to identify a common definition of a patient presenting late for care.

Surveillance to identify the exact extent of the problem of late diagnosis of HIV has been complicated because there existed more than 20 different definitions. A common definition will make the problem of late presentation more “visible”, improve surveillance data and comparison between countries, facilitate identification of risk factors in a common way, and serve as a quality control marker for public health policies and academic initiatives promoting earlier diagnosis.

Other presentations of results
Presentation of the definition at the HIV in Europe 2009 Conference, Stockholm, November 2009, by José Gatell

2. Epidemiology of late presenters

Project financed by EuroCoord with the objectives to study the epidemiology for those persons who are presenting late with HIV over time compared to those presentingtimely for care. The project is funded through the EuroCoord Network of Excellence FP7 grant.

Surveillance to identify the exact extent of the number of undiagnosed people living with HIV remains insufficient across Europe. Different estimation approaches exist, using different sources of data, and many countries do not appear to produce any estimates.

A project group led by Andrew Phillips, UCL has worked to create a guidance document for countries on data requirements and available methods for estimation of the number of people with HIV. The document outlines all availabl approaches and provides the necessary guidance for using them. It is a first step towards a coordinated European approach.  

Presentations of results
HIV in hiding: Methods and data requirements for the estimation of the number of people living with undiagnosed HIV. Working Group on Estimation of HIV Prevalence in Europe, AIDS 2011

Presentation from the HIV in Europe 2009 Stockholm Conference, by Andrew Phillips, UCL

For more information please contact the HIV in Europe secretariat:

Dorthe Raben
Rigshospitalet, University of Copenhagen
CHIP, Department of Infectious Diseases
Section 2100, Finsencentret
Blegdamsvej 9
DK-2100 Copenhagen Ø
Tel: +45 35 45 57 82
Fax: +45 35 45 57 58